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— Read on todaymycoffeetasteslikechristmasincostarica.com/2021/01/17/the-future-of-follow-up/amp/
Today I’ve copied a list from my friend Dani regards the future of head and neck referrals plus give it a look as things are possibly going to change in my opinion for the better
Head and neck collie ups are still following protocols back from the 1960:70 s era. Nowadays things are more patient driven , the way forward is possibly going to be a pet xf scan after one year then self monitoring with guidelines . Studies in feasible ways forward are ongoing.
Give it a read and follow the links.
Radioactive Raz 
Thanks for putting this up. We have a chance to have an input in how they are going to do this. If we don’t make our voices heard…voices from sufferers… we risk being left behind in the decision process. Change is coming; it’s inevitable
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Hi,
Thanks for blogging about your experience. I was wondering around when your tastebuds (sweet and salty) came back? And also, are you able to eat spicy now?
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Hi I still can’t do spicy tried again mild curry at weekend now have 3 ulcers. I never lost taste but people say around 3-6? Months. Anythjng else j can help with. Thsnk you for reading the blog Hazel xx
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Did you have a lot of phlegm and coughing? I’m currently dealing with that right now. I’m on my first week of recovery. I’m definitely having a lot of trouble sleeping. It’s not so much the pain, but the constant coughing up of phlegm.
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Yes you’ll will get that for maybe weeks. It’s the body’s way of compensating for the brutal treatment if yours jyst staring with it you’re lucky as mine started week 3 of treatment. Do you have a nebuliser from hospital plus a humidifier I bought my own from Amazon for bedroom at night. Drink plenty of water as hard as it is if you’ve a peg use that. Plus spit constantly not nice but only way xx
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My coughing, phlegm started week 5 or 6 into treatment. It’s been keeping me up at night. On the bright side, I do seem to have saliva production. It’s just that I can’t swallow/hurts to swallow. I’ve been on a peg tube since week 3 of treatment, but I’m making some progress this first week of recovery since I can swallow some liquids. I’m young – 30, so hopefully my body is able to heal much faster.
I was given a suction machine for all the mucus, but it seems to hurt and dry my mouth out more than just plain spitting it out. I’ve given myself the grace to just spit out constantly. I’m already active and walking about 0.5 miles a day and riding my bike, but it’s tough to exercise outdoors when I have constant phlegm and saliva in my mouth.
I do have a humidifier. Thank you so much for responding and being such an inspiration and great resource for what to look forward to in recovery. I’m guessing your life is mostly back to normal now, aside from spicy eating. What about dry foods like chips? I do love chips a lot.
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Hi Karen I can now do chips but only deep fried ones we bought s deep fat dyer it’s one from chip shop. Life is pretty good I still have dry mouth especially at night time. Dry mouth is the most common long lasting side effect once your mucus goes you may find you get even drier hopefully you don’t. Spicy food I doubt will come back to me but hey worth it ti he alive. Chicken took a long time snd mashed potatoes can be hard. Will update blog shortly as fast approaching 3 years in remission if u can help just ask Hazel
I can bike 50 km easily and two days ago did 1500 feet of climbing snd a 16 km tough walk in dark Peak District do not bad fircs 64 year old lol
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Odd that a soft food like mashed potato gives you trouble even to now. But I suppose it can be a bit dry. I guess they do say everyone’s recovery different.
I’m glad you’re so active now and your diagnosis seems to be a blip in your life.
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It is as time goes by you’ll find one day you can eat something then try it a few weeks later and you can’t don’t give up it will come back to you. Even now at almost 3 years I’m still finding small improvements ! Enjoy your day it’s bedtime here in the U.K. night night x
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Hi. I thought I’d invade your post. That’s mine at the top of the page
The mucous is the pits but I can’t imagine sucking it out! 😳 poor you. I just drank loads to thin it and spat loads. It went practically overnight at around six weeks.
At 12 weeks I could eat a steak but at 2 years on I’m still not comfortable with potato chips but sweet potato is great.
Crisps? I can demolish a bag in a few minutes without a drink so it all does come back.
I was 68 when my treatment started so I guess you’ll be much better faster than me. Good luck
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Thanks for invading the post 😀
I’m from the US. What’s the difference between crisps and potato chips?
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Hi crisps are very thin slices of potato deep fried but you buy them as a snack usually 30 gram packets can be ready salted or plain through The flavour range cheese n onion salt and vinegar up to chilli Potato chips are thick fingers if potatoes deep fried eaten hot with a meal or just on their own. Hope this helps. Where in the states are you ?
Hazel
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Ah, okay. I’m in California. In the US, crisps = potato chips.
UK potato chips = US french fries, normally eaten with a McDonald’s burger and a soda or something like that.
Well, I’m glad to hear both of you are able to eat potato chips and crisps. I do love both those things and would be like extremely upset if I have to give them up for the rest of my life.
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crisps are very thin slices of potato deep fried but you buy them as a snack usually 30 gram packets can be ready salted or plain through The flavour range cheese n onion salt and vinegar up to chilli Potato chips are thick fingers if potatoes deep fried eaten hot with a meal or just on their own. Hope this helps. Where in the states are you ?
Hazel
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Potato chips are thick fingers if potatoes deep fried eaten hot with a meal or just on their own. Hope this helps. Where in the states are you ?
Hazel
Crisps are a snack bought ready cooked
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